Care & Share

Welcome to our Care & Share blog! This blog features care advice for caregivers, family members, and friends of those with dementia. We also have information on caring for caregivers. If there’s a topic you would like to see addressed, please let us know! You can give us a call at 901.854.1200 or email our Program Director, Sheri Wammack at sheri@pagerobbins.org.

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  • February 22, 2019

    Television and Dementia

    Let’s just admit it: Most of us watch TV more than we should.  It’s an easy way to pass the time.  Especially when it’s cold and rainy outside.  Especially when you’re not as active as you used to be.  And especially when you have dementia.  TV seems like a good time filler. 

    Television isn’t a bad thing.  It’s okay to watch good content in moderation.

    Please Note: There are many other activities that are better for your loved one’s physical, emotional, and cognitive health than TV.  Walking, playing a game, reading, visiting with friends, etc.  (You can find a previous blog post about activities here and a list of in-home activities here.)

    Dementia affects people’s perception.  Your loved one with memory loss may have a very different experience watching TV than you because of this altered perception.  They may think that the things they’re seeing on TV are happening in real life.  Some examples:

    Mom watches a news story about a burglary.  Now, she thinks she has been burglarized.

    Your wife watches a crime show about a serial killer.  Now, she is convinced that the serial killer is after her.

    Dad watches the news every evening.  Now, he thinks the national news anchor is his best friend who comes over every day to talk about the news.

    Grandma watches a sitcom.  Now, she believes that all the people from the sitcom are at her house and that she needs to find a place for them to sleep.

    Moral of the story: It’s important to monitor what your loved one with dementia is watching!  Oftentimes as dementia progresses, it becomes increasingly difficult to follow a program.  The person may nod off, lose interest, or ask repeated questions to try and keep up with the story line. 

    When you do watch TV, here’s what we suggest:

    • Avoid shows that upset your loved one.  If it causes any stress or anxiety, don’t watch it.
    • Block home shopping channels. Your loved one has impaired decision making skills.  Home shopping commercials are designed to be very convincing.  You don’t want to end up with 7 sets of luggage from QVC.
    • Avoid shows with lots of family drama. Have you ever noticed how a show can alter your mood?  Your loved one is even more susceptible to this.  Don’t watch shows that amp up the drama.  Most families don’t need any more drama.
    • Choose programming from your loved one’s generation.  Examples: I Love Lucy, Lawrence Welk, Sanford and Sons, etc.  This might be a great opportunity to reminisce and talk about times past.
    • Watch a game show.  There’s no story line to follow, so they’re easier to watch.
    • Watch through a streaming service (Netflix, Hulu, etc.), so you can curate the content to your loved one’s specific interests.  Does Mom like baking?  Watch the Great British Baking Show.  Does Dad like war documentaries?  They’ve got those!  Does your husband love dogs?  Search for a movie or documentary that features a dog.
    • Watch a musical.  Music is always good for the soul.  Bonus: Put on the closed caption to make it a sing-along. 

    January 30, 2019

    From the Nurse’s Desk: Dehydration

    In addition to our monthly blog posts, we’re about to start a new monthly feature called “A Tip from the Nurse’s Desk.” This series will share information on preventative care and tips for healthier living from our nurse, Kiesha.

    If you want to receive this information, be sure you’re subscribed to our monthly caregiver email, Caregiver Connection. At the first of each month, we’ll send you an email with a list of caregiver support groups, a Care & Share blog post or video, and A Tip from the Nurse’s Desk.

    This first tip is so important we decided it needs to be its own blog post.

    From the Nurse’s Desk

    Dehydration is something that gets talked about a lot in the summer months, but it’s a problem all year round. In the winter, we may not feel as thirsty, so we don’t drink enough. Also, central heat creates a dry environment, meaning we need more fluids to make up for the dryness.

    Dehydration is a term used to describe an excessive loss of water that disrupts the body’s normal functions. Dehydration takes place when more fluids are lost than taken in. It has become a common problem among seniors. It is important to watch your loved one for signs of dehydration.

    Some causes of dehydration:

    • Medications (example: Diuretics such as Lasix)
    • Decreased thirst
    • Forgetting to drink fluids
    • Decreased kidney function (As we age, our kidney function decreases, and they can’t hold as much fluid.)
    • Illness

    Some symptoms of dehydration:

    • Increase in confusion
    • Delirium over and above typical dementia symptoms
    • Dark, strong smelling urine
    • Dry, papery skin
    • Dry, cracked lips
    • Urinary tract infection (which can also cause delirium)
    • Headache
    • Sunken eyes
    • Constipation
    • Lower than normal blood pressure
    • Fast/weak/irregular pulse
    • Loss of consciousness in severe cases

    Dehydration is a serious (and unfortunately common) problem and can cause serious health issues. So how can we prevent our loved ones from getting dehydrated?

    1. Pay attention to fluid consumption! Pay attention to how much water your loved one is drinking. Keep a log if you need to.

    2. Make drinking easier.  Some ideas: Easy-to-open tops, non-spill cups or water bottles, one-way straws.

    3. Set reminders with technology. Set up Reminders or alarms on your phone. Use something like an Ulla. Ulla is a water sensor you can strap around your drinking glass or water bottle. It glows to remind you to drink at regular intervals.

    4. Get creative. You don’t have to just provide plain tap water, and even if you do, you can make it more interesting by adding slices of citrus or cucumber. Trade water for a low-sugar sports drink. Popscicles are always a fun way to stay hydrated.

    5. Offer food with high water content. Broth-heavy soups, apples, oranges, berries, grapes, watermelon, cucumber, and cottage cheese all have high water content.

    6. Keep an eye on caffeine intake. Sodas, coffee, and other things containing caffeine are fine in moderation, but caffeine is a diuretic and may contribute to dehydration. Don’t count coffee or soda in your daily fluid intake.

    December 31, 2018

    Transitioning to Long Term Care

    Moving your loved one into a dementia care residence or skilled nursing home is difficult for all parties involved.  Here’s some suggested Dos and Don’ts to make the transition easier for you and your loved one.  If you have questions about your specific situation, please give us a call at 901-854-1200.  We’d be happy to help.

    DON’T buy all new furniture, bedding, and décor.  You may think shiny, new home goods will make the room look more inviting to your loved one, but you’ll be breaking the bank when your loved one will most likely prefer their tried and true possessions.

    DO furnish the room with familiar and well-loved comforts of home.  Take your loved one’s bed if it will fit.  Use sheets, blankets, and pillows that have the smell of home.  Don’t wash these things prior to making the bed at the new place.  The familiar scent and feel will make for a better first night’s sleep.  If possible, take your loved one’s favorite comfortable chair.  Bring a cozy blanket for chilly nights.

    DO bring copies of pictures and/or picture books.  Make copies of the original pictures, so if they are misplaced, you’ll still have the original.  Create a photo book through Walgreens, Shutterfly, etc.  We’ve seen families create a life story book filled with pictures and captions of loved ones, special places, and milestones throughout the years.

    DO label everything.  Limit the clothing you take.  It’s easy for clothing to get messy and get lost.  Hang shirts, pants/skirts on the hanger together as a set.  Label socks on the bottom of the foot.  Label underwear.

    DON’T take anything that you would be upset if it disappeared or was damaged.  Please be sure that nothing of significance is in your loved one’s wallet (social security card, credit card, etc.).  The facility will have a “bank,” so your loved one won’t need cash.  If you need to leave cash, try not to leave more than $10.  Also, swap out real jewelry for costume jewelry.

    DON’T move on the weekend.  Generally, there are fewer management staff available.  You want to have the best first couple of days you possibly can.

    DO make alternate plans for your loved one on moving day(s).  It’s difficult to see your things boxed up and moved around.  Move your loved one’s things while they are otherwise occupied to minimize their stress (and yours!).  If your loved one is attending an adult day program, get everything moved in and get the room ready while he/she is at the day program.  You may feel like you need to discuss everything and get their permission, but this is likely not one of those situations.

    DO share bullet points of a typical day with facility staff.  Here’s an example:

    • 7 am – Wakes up, likes his coffee with 2 big splashes and cream and 2 teaspoons of sugar
    • Prefers to bathe before bed
    • Might nap after lunch but otherwise doesn’t nap much during the day
    • Enjoys playing cards in the afternoon
    • Likes to talk about his grandson
    • Storms and loud noises make him anxious – listening to music usually makes him feel better
    • 8:30 pm – goes to bed with the TV on

    DO inform your loved one’s physician that you are making the move.  If your loved one is prone to anxiety and/or displays high levels of agitation during the transition, the physician may want to prescribe something to help.

    DO ask the facility for tips and ideas.  Trust that the facility has helped many people make this place home.  They may have good suggestions on when to visit, how often to visit, and ways for you and your loved one to adjust.

    DO be patient with the transition and with yourself.  It may take a while for your loved one to settle in.  That’s okay and to be expected.  Know that if this isn’t the right place, you can make a move.  You’re making the best decision you can with the information you currently have, and it’s enough!  It’s okay to change your mind.

    October 29, 2018

    Support Group Benefits


    Recently, I sat in a Page Robbins support group, and one caregiver mentioned that a way she takes care of herself is by coming to support groups. She asked: “Why doesn’t everyone else come to these meetings? I know we aren’t the only people that need support.” That got me thinking about the perception of support groups. Most people probably think that support groups are going to be depressing – nothing but crying and sharing. That they’re not worth the drive or rearranging your schedule.

    In reality, there may be some crying and quite a bit of sharing at support groups. But they are also so much more than that. They can be fun, enlightening, meaningful, helpful, and more. Here’s some benefits of support groups that may surprise you:

    Kindred Spirits
    You are not alone. There are others who get it – who are feeling and experiencing the same things you are. There’s a difference between knowing you are not alone and experiencing it in-person. It’s immensely helpful to interact with others who understand.

    Social Connection
    Let’s be honest. Caregiving can be isolating. Caregivers often don’t have time or energy to go out and do social things, like get coffee or dinner with friends. Support groups can be an outlet for worry-free social time. Bonus: you don’t have to look fancy or spend a bunch of money. Many of our support groups offer a laidback social atmosphere.

    Friendship
    We have seen some great friendships form from support groups. If you think about it, often our closest friends are the ones with which we share things in common. What better friend than someone who is navigating or has navigated a similar journey?

    Honesty
    There are not many places you can be honest about your caregiving. The highs. The lows. The struggles. The things you never thought you would have to do. You can lay it all out. No embarrassment or shame. It’s REAL conversation.

    Humor
    Yes, there are tears shed in support group, but there is often laughter as well. It is so important to find humor in life. Others can help you do that! Laughter is good therapy. Laughing with others is even greater therapy.

    Feeling of Purpose
    Not only will you receive help, but you can also extend help to another. You may meet another caregiver who needs your help. You may meet another caregiver who is going through something you have already experienced. You can lend your experience and understanding.

    Empowerment
    You can find the support you need to get through another day, another week, another month. You can learn about resources. You can learn best practices. You can find a network of support. You can be empowered for the days ahead.

    Have we convinced you yet? Are you ready to join us for a support group? You can find a list of the current month’s support groups here. We would love to see you there! Don’t see a support group that matches your schedule or preferences? Let us know. We’re always looking to make our support groups better and welcome your suggestions.

    The Alzheimer’s Association has a tool that allows you to search for a support group near you. Find that tool here.

    September 19, 2018

    Finding Joy


    Dementia is a hard. It’s hard for the person diagnosed: learning to adapt, trying to keep up appearances, coping with the loss of their own abilities. It’s hard for caregivers: constantly grieving little losses of their loved one, stressing over important decisions, losing sleep, answering the same questions repeatedly. Because dementia makes life so difficult, many families lose their joy. But it doesn’t have to be this way. It is possible to still find joy in each day.

    7 Ways to Find Joy in the Day:

    1. Live in the moment.
    Turn on your loved one’s favorite music, turn up the volume, and dance. Watch a favorite movie. Go for a drive and get an ice cream cone.

    2. Focus on the good times.
    There are difficult days ahead, but instead of dwelling on the bad, focus on the positive. Hold on to those good and funny moments. Write those moments down on Post-It notes or in a journal and come back to them when you need a reminder.

    3. Pick your battles.
    Not everything is worth arguing over. Give in when you can. Ice cream for dinner – why not?! Arguing takes up time and energy that you don’t have and leads to frustration on both sides. (When appropriate) give in!

    4. Spend time with friends and family.
    Invite friends and family over. Even if your house isn’t clean, even if you look a hot mess, and even if your fridge is bare! Company is good for our souls. Ask one or just a few people over at a time, so your loved one doesn’t get overwhelmed. Offer coffee and a dessert (or ask your guest to pick up dessert at on the way). Focus conversation on fun times spent together. Share funny stories.

    5. Do an activity with your loved one at home.
    Look through old photo albums. Remind your loved one of stories the pictures tell instead of asking him/her a bunch of questions about the picture. Check out our previous blog post with other fun activity ideas. The possibilities are endless.

    6. Go on a mini adventure.
    Walk through an art show. Visit a museum. DIY your own driving tour of Memphis. Sit by Patriot Lake at Shelby Farms or sit in The Peabody Lobby and people watch. Ask your Facebook friends for new restaurant recommendations, and then go try them all.

    7. Go for a walk.
    LR Knost said, “When life feels too big to handle, go outside. Everything looks smaller when you’re standing under the sky.” Fresh air and exercise is good for everyone. You don’t have to talk or force conversation. Just walk. Hand in hand.

    There will be plenty of grief, worry, and struggles with dementia. When you can, choose to enjoy the moment. Decide to share a laugh with your loved one. Share fun memories. And if you have ANY doubt that those affected by dementia can have joyful moments and great days, come see us at Page Robbins. There is much joy within these walls, and we would be happy to help you find it!

    Also, be sure to check out this TED talk by Beth Fauth on Finding Joy on an Alzheimer’s Reality.

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